Julie is a REAL BIRD
@joolie.bsky.social
Thank you ❤️❤️❤️ things are very... Mixed, so I'm coping. Just so hard to know what to say anymore. I'm so full and so empty at the same time. And I used to (almost) fearlessly share almost every last thought, but after the move to bsky I got stage fright somehow. 🤔
I. Love. My. Nextdoor. Neighbors.
Seriously, getting an email titled, "There is a duck in my neighbor's yard." made my evening.
She was genuinely worried she'd need to drive the duck back to the lake. I love these people so much.
Hi hi hi! Not very much, just kinda trying to recover as much as I can and working on next health steps and all that jazz. These days are mostly spent sleeping, honestly. If not that, combing through research and patient stories. Other than that, birds. They got a new diet that helps.
How bout you?
I'm ok with having seen one solar eclipse. Not totality of course but I got a few 'eh' photos and then started taking pictures of birds instead of the sun anyway. The photo of the bird is WAY more interesting.
I am SO GLAD you recovered. A fever that high, there was a legitimate chance that you might not have. That really wrecks you! Such scary shit. I hope you never have to experience anything like that ever again.
Holy balls, 103 for THREE DAYS 😱 That is as stressful as it is miserable!
Oh my gosh I've been there. There was a time in my life where I had a standing anti-emetic prescription just in case, because it was way the heck easier than the alternative. 😱
I hope the rest of your recovery is uneventful and you're back on your feet soon!
Honestly, there's soooooo many people who believe that a really bad cold is "the flu" simply because they think a cold "can't be THAT bad". Layers upon layers of denial and misinformation.
Oh and of course "the stomach flu". That's not influenza, friends.
I am so sorry for your loss, and for the permanent affect the flu has had on your own health. ❤️
Oh shit, I'm sorry. Several years!! Ugh. How frustrating and painful.
I need more spoons so I can help make this happen where I live, I wish I had done all the choppy choppy stuff BEFORE THIS so I could maybe be BETTER so I could DO THIS but also lol I wouldn't need it so would I be doing it?!
I'm blabbering myself in circles. I'm a mess. 😂
So glad it's going well ❤️
ILU so much, this makes me cry happy tears through my other tears. ❤️
Oh my god. 🫂🫂🫂!!
Falling down an eternal hole is a good way of putting this feeling.
No I'm in the US! Hopefully no one else in your area is bailing! I'll cross my fingers! 🤞🤞
I'M GOING TO GO LIVE UNDER A ROCK NOW AND JUST GIVE UP ON ALL THIS DIFFICULT BULLSHIT AAAAAaaaaa
How the fuck is anyone supposed to try to get better when all the doctors are quitting
HOW
every day I think about all the patients who have already given up and I just... salute them, I guess.
I want an actual referral so bad! If this ding dong (SAID WITH LOVE I SWEAR) had found someone to hand us off to, I wouldn't be so upset. Still upset but not this much!
And dude got me all hooked on his quack juice, too! (Exosomes)
My complex disease specialist is dropping me (and most of the rest of his patients) so I am feeling sad and betrayed today.
This makes things so much more difficult to face. I don't know what I'll do. I'm racing to try to find someone but he was The One, I thought. :(
It's so pansy-like, all frilly dress. 😍
Pinguiculas just love you!
Every time people say, "it's just the flu" I'm like, JUST the flu?!
Just the flu mopped the floor with me!
People have spent years downplaying COVID by saying "it's just the flu." This is reckless for many reasons, one of those being that new flu strains pose a constant threat to public health. I really hope we don't have to experience directly how devastating the flu can be.
Oh that's so unfortunately relatable. I'm sorry this navigation has had so many emotional hazards. I'm glad you're seeing them and identifying them, and I know that even though it's so so difficult, you're making your way, and it's so kind of you to share so that others can take comfort. ❤️
Oh no, all my sympathies to you, your partner, and your partner's dad. That's such a profound loss. ❤️
Oh it's so exhausting. It erodes you. I'm so sorry. All my spare 🥄s and ❤️.
Such a freaking blessing. I have been hacking off my own hair for several years now. If I cut it while it's dry, I'm always very happy with the result even if I then style it with goo. Curls just erase mistakes!
Random thought, but both our flights had what felt like really chaotic TSA screenings, even the flight that was relatively late in the evening when the airport was not busy.
It didn't feel like that the last times I flew. Is it my imagination or is it just a really terrible NOT secure shitshow now?
Nothing is working quite right today so I'm staying in bed and it's hard to internalize that it's okay and necessary and to accept and blah blah blah I just wanna get out of bed and also while I'm at it I want a pony and a million dollars
I had to stop keeping betta fish because of this. I was taking in culls because I'm a weird sucker, and I'm sure the breeders had great intentions and they're culls for a reason but oh my gosh these poor fish get put through too much to satisfy fads and fish fashion shows.
It's amazing how many people want to lecture someone about "that's not anaphylaxis!"
That's not the greatest fight to pick, really.
"That word is racist. I don't like it."
Dunno why, but that's always in my head, how upset she is over that.
I'm happy to be back thinking the same way you do! 😁
Also, toasters happen to be one of my defaults as well but that's because of Battlestar Galactica.
"In the distance, a salmon is barking."
…Somebody in another department does something awful and it makes the news and people inform you that your administration is a blight and you’re left going “…I just do rivers…we did a good job…?” and somebody on social media accuses you of being an apologist.
In the distance, a salmon is barking.
Too real. I'm not sure how to feel about the fact that I've become that person. If I find a pill somewhere in my house, if it's not too dirty... I just take it?! Even if I don't know for sure what it is?! I just know it's definitely mine and it probably belongs IN me, but I dropped it, so... Omp?!
But it really flies in the face of a lot of stuff we've slowly, meticulously learned; how our most basic energy metabolism has changed or fallen into traps, how deconditioning affects us, how our neurology and even microbiome changes... How can all that stuff just...NOT be that way for 20 minutes?
Not too nosy at all. It's definitely some "don't get your hopes up", but it's also "I secretly at least partially believed all the doctors who said it was psychogenic" and "but HOW is it physically possible to get such a dramatic remission, even temporarily?" It feels like a TRICK somehow?!
Yeah I'm not sure how you could actually do this without, basically, a type of intubation. Engineer spouse has also spent a lot of time on this. It's even included trying to repurpose cooling vest stuff, but really nothing, NOTHING, has been practical or successful, let alone both. I'm sad about it.
Honestly, same; I admit that I didn't TRULY believe that this world happen. I spent a LOT of time mentally arguing with myself for spending all the time, energy, & money on this venture that I didn't really 100% "believe in" and then there I was, bright as the sun again? I have cognitive dissonance.
I really really wish there were a non food way of getting an ice pack in there! I need more anti inflammatory goodness!
The worm Holocaust! 😱🫣
Who's got a home garden big enough that needs legitimate "tilling" though? Asking for thirty seven packets of tomato seeds.
In fact, spouse observed my improvements in traction as "like all the ice cream and xanax at once".
With enough of both of those things, I am ALMOST as well as when I have 35lbs of traction on my cervical spine.
So anyway, that's a thing I can't explain other than "an internal ice pack"? 🤷♀️
Ice water, when directed to hit a spot way at the back of my throat, can give me SOME limited relief, but only WHILE I'M DRINKING IT (and drinking it in that way is miserable). Ice cream can make me feel well enough, LONG ENOUGH! to successfully shower unassisted. That's SIGNIFICANT IMPROVEMENT.