I might be like not completely understanding the idea of the medical model vs the social model of disability but it seems to me that which diseases have good treatments and which don’t is socially determined, at least in part
#LongCovid #mecfs
I might be like not completely understand the idea of the medical model vs the social model of disability but it seems to me that which diseases have good treatments and which don’t is socially determined, at least in part #LongCovid #mecfs
今日は過日の青空をお届けします😃
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筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
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#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
This'll fix me, and it's just a prohibitively expensive supplement supporting the Krebs cycle. #mecfs #longcovid
Oxaloacetate reduces fatigue significantly in 80% of people with chronic fatigue syndrome in an early study. More study is needed.
www.healthrising.org
A picture of Timmy reserving a seat for "my dr who gets mad on my behalf of other drs who treated me like crap"
#chronicillness #chronicillnesshumor #chronicillnessmemes #autoimmune #autoimmunememe #spooniememe #spooniehumor #fibromemes #fibromyalgia #spoonie #mecfs #longcovid #chronicillnessmemes
今日は青いネットで被われた工事現場をお届けします😃
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筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
2/
In this study, having previously received an functional somatic syndrome diagnosis such as CFS was associated with female sex and poor health-related quality of life. No association was found for health anxiety, kinesiophobia and physical activity.
#mecfs #cfs #fibromyalgia #ibs
Yeah at best I'm the crappy end of moderate. At worst (which is mostly tbh) the shallowish end of severe. #mecfs
今日は青いバリケードをお届けします😃
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
Me/cfs sucks!! Sure, it’s not fatal and I’ll prob live another 50 years.. but I’m only living 10-20% of a life. So at that rate I’m looking at like 5-10 years worth of actual life experiences left to live, total.. and the rest watching tv or laying in pain. Why tf is this so underfunded?! #mecfs
"Believe your patients. The vast majority of people don't pretend to be sick. They pretend to be well."
Important words from Pam Bishop
Thank you for the awesome talk!
#UniteToFight2024 #mecfs #LongCovid
How did they get this accurate picture of me?
#chronicillness #chronicillnesshumor #chronicillnessmemes #autoimmune #autoimmunememe #spooniememe #spooniehumor #fibromemes #fibromyalgia #spoonie #mecfs #longcovid #chronicillnessmemes
Sehr toller Beitrag von David Putrino:
Die Medikamente sind da, man muss nur die individuellen Veränderungen identifizieren und die richtige Kombination an Medikamenten finden.
Eine Komplexe Erkrankung erfordert eine komplexe Behandlung
#UniteToFight2024 #mecfs #LongCovid
This tracks with experience. The CSF pumping slows while sleeping and the toxins make sleep worse creating a vicious cycle.
You have to move, but moving creates PEM.
Which is why we must use extracorporeal technologies. #mecfs
www.sciencealert.com/study-finds-...
This challenges a dominant theory.
www.sciencealert.com
今日は過日の青空をお届けします😃
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
another hard morning. after i wake up i have a few minutes of peace. i remember during my worse times it was about 15 minutes of feeling “fine” (comparatively, not fully well) and i used that time to use the restroom. take meds before the symptoms hit me.
so i did that today. now the truck
#mecfs
I'm giving this thing a try. Will let you know what I think over the coming weeks. #mecfs
Visible provides the tools you need to understand your energy-limiting condition. Use data to pace your activity, manage your symptoms, and help move science forward.
www.makevisible.com
Zwischenzeitlich mehr als 1800 Menschen online bei #unitetofight2024
Großartig!
Mir geben die Beiträge und die Expertise und die Leidenschaft, mit der die Menschen hier ihre Beiträge geben, Hoffnung für die Zukunft.
Danke!
#postcovid #mecfs
Es werden noch Teilnehmer für eine Studie zu Long COVID gesucht:
www.myoflame.com
#UniteToFight2024 #mecfs #LongCovid
Great to see more than 1000 people watching the beginning of the #UniteToFight2024 #mecfs and #LongCOVID conference. Off to a flying start!
今日は花をお届けします😃
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
i am having a grumpkin day i hate #mecfs happy awareness month. here’s me posting old selfies of a body that could go to the beach and change clothes every day and swim in the ocean.
Welp, my first hair appointment in 5 years is cancelled as they want a skin test, and I can't go there twice without disastrous consequences because #mecfs, and also I seem to have entirely failed to find someone whose life purpose is to FERRY ME ABOUT.
Huge oversight on my part.
"In simple terms: what happens to a cyclist at the end of the Tour de France is the same physiologically, as what happens to an ME/CFS patient, when he or she simply takes a shower."
#mecfs
youtu.be/MUMGaX3BEs4?...
The best most up-to-date movie about ME/CFS. It shows how the disease affects individuals and the current research being conducted by Ryan Prior. Forgotten P...
youtu.be