#MEcfs ist...
wenn dein alter Patenonkel aus dem Ausland zu Besuch kommt und du weißt,
es ist das letzte Mal.
Selbst unter Schmerzen kannst du nur ne knappe Stunde mit ihm verbringen.
#ME ist die Hölle
#LearnAboutME
P.S. es geht hier um eine Freundin
Aprovado projeto que prevê condições especiais para facilitar crédito a negócios de pessoas com deficiência (PCD).
#LobsContabilidade #Crédito #EPP #Financiamento #ME #MEI #PCD
lobscontabil.com/aprovado-pro...
Lobs Contabilidade - Aprovado projeto que prevê condições especiais para facilitar crédito a negócios de pessoas com deficiência (PCD).
lobscontabil.com
More from my main Stardew Valley 1.6 gameplay.
Still convalescing and will share some of my cozy grove shots soon.
#stardewvalley #ME #CFS #hEDS #EDS #SDVmodder #disabeldgamer
Taken a break from Stardew Valley (1.6 on GOG) but here’s some recent screenshots of modded barn & coop
Currently playing Cozy Grove on the Switch whilst convalescing during bout of chronic fatigue since it’s hand held v. desktop. Playable in bed is the main feature 😅
#ME #CFS #stardewvalley #EDS
Source:
'Medical students highlight the importance of medical education, kindness, compassion and belief when learning about patients with myalgic encephalomyelitis/chronic fatigue syndrome'
#LongCovid #ME #MECFS
journals.sagepub.com/doi/full/10....
Subscription and open access journals from Sage, the world's leading independent academic publisher.
journals.sagepub.com
Als #Antifaschistin und Mensch mit #MEcfs finde ich es extrem wichtig,
sich #Essen zu #widersetzen
Hin da wer kann!
Fight #Ableismus!
#LearnAboutME
Antischnitzelige Aktion
Für #Antifa ohne #ME:
In #Essen ist ein rechter Neurologe der Schwerkranke hasst, stigmatisiert und bekämpft
In einem Monat alle nach #Essen! Es gibt Busanreisen aus verschiedenen Städten in Deutschland, ein Protestcamp ist geplant!
Lasst uns den Naziparteitag der #AfD zum Desaster machen!
#blockafdpt
Als #Antifaschistin und Mensch mit #MEcfs finde ich es extrem wichtig,
sich #Essen zu #widersetzen
Hin da wer kann!
Fight #Abelismus
#LearnAboutME
Antischnitzelige Aktion
Für #Antifa ohne #ME:
In #Essen ist ein rechter Neurologen der Schwerkranke hasst, stigmatisiert + bekämpft
In einem Monat alle nach #Essen! Es gibt Busanreisen aus verschiedenen Städten in Deutschland, ein Protestcamp ist geplant!
Lasst uns den Naziparteitag der #AfD zum Desaster machen!
#blockafdpt
💥PEM is often the missing link, the crucial understanding gap between patient and health professional, school and wider society.
💥Yet it is the cause of the most debilitating effects of #LongCovid and #ME.
💥Where the danger of patient harm lies
danilobuonsenso.substack.com/p/post-exert...
"It is vital that this topic features more prominently in the medical curriculum, and in our medical textbooks, to avoid patient harm due to delayed or mis-diagnosis and mismanagement."
#LongCovid #ME #MECFS
journals.sagepub.com/doi/10.1177/...
"Supporters van Utrecht zijn na afloop van de wedstrijd slaags geraakt met de politie. Rondom stadion Galgenwaard belaagden ze agenten met stenen, fietsen en andere voorwerpen. Meerdere agenten raakten gewond, twee personen zijn opgepakt." Twee! #demonstratie #palestina #voetbal #ME #Dijksma #Gaza
Stay #WOKE , & Expanding Our Mind/Brain 🧠 & Close Inner-Circle's,
Is How We Grow 🪴 Human Empathy & More Awareness & Tolerance :)
#InvisibleDistabilities #EDS #ME #CFS #RSD #RSDS #CRPS #CRPSType1 #CRPSType2 #NOS #CRPSNOS #CRPSTypeNOS #Share #SocialMedia #Disabled #Disabilities #ChronicPain #Pain
🧵
May is Myalgic Encephalomyelitis (ME) Awareness Month.
You can help by liking and/or sharing this video. This 2017 TED talk features
youtu.be/Fb3yp4uJhq0
#MyalgicE
#MyalgicEncephalomyelitis Day #1
Five years ago, TED Fellow Jen Brea became progressively ill with myalgic encephalomyelitis, commonly known as chronic fatigue syndrome, a debilitating illness that severely impairs normal activities and on bad days makes even the rustling of bed sheets unbearable. In this poignant talk, Brea describes the obstacles she's encountered in seeking treatment for her condition, whose root causes and physical effects we don't fully understand, as well as her mission to document through film the lives of patients that medicine struggles to treat. TEDTalks is a daily video podcast of the best talks and performances from the TED Conference, where the world's leading thinkers and doers give the talk of their lives in 18 minutes (or less). Look for talks on Technology, Entertainment and Design -- plus science, business, global issues, the arts and much more. Find closed captions and translated subtitles in many languages at http://www.ted.com/translate Follow TED news on Twitter: http://www.twitter.com/tednews Like TED on Facebook: https://www.facebook.com/TED Subscribe to our channel: http://www.youtube.com/user/TEDtalksDirector
youtu.be
26/
3-minute Action For M.E. #ME video. Uses survey data to list symptoms & for examples of effects on life youtu.be/3aBfoGeUXUg
Day 26
#MEcfs #CFS #MyalgicE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #meawareness #mecfsawareness
M.E. is so much more than just tiredness. There are dozens of painful, debilitating symptoms associated with the illness. In this powerful awareness-raising ...
youtu.be
Mit #MEcfs leben, heißt bei mir auch, mir fremdsprachige Skeets mit relevantem Hashtag wie #PEM oder #ME übersetzen zu lassen und wenigstens ein 🫂 dazulassen.
#SehenUndGesehenWerden
A iniciativa é destinada a empresas com faturamento anual de até R$ 4,8 mi e segue os moldes do Desenrola Brasil.
#LobsContabilidade #Débitos #Desenrola #ME #MicroEmpresa #PequenosNegócios
lobscontabil.com/programa-des...
Lobs Contabilidade - A iniciativa é destinada a empresas com faturamento anual de até R$ 4,8 mi e segue os moldes do Desenrola Brasil.
lobscontabil.com
Anta:
”Sjukdomarna är svåra att leva med, men det är kontakten med Försäkringskassan som knäcker mig.”
#sjukförsäkring #svpol #Försäkringskassan #sjukpenning #sjukskrivning #utförsäkrad #ME #MECFS #Fibromyalgi #AFAförsäkring #körtelfeber #anhörigförsörjd
116omdagen.wordpress.com/2024/05/19/a...
Illicit #Marijuana Grow Near U.S. Army Base in #Maine Tied to Chinese Communist Party’s NYC #Consulate
www.themainewire.com/2024/05/illi... #Weed #Cannabis #ME #CCP
In the town of Dexter, Maine, a seemingly abandoned property on Highland Avenue that once operated as an illicit marijuana cultivation site sits less than a mile from the U.S. Army Reserve Training Ce...
www.themainewire.com
Sign the petition against the harmful bill that wants to ban medical facemasks t.co/eem9KvET59
#LongCovid #ME #MillionsMissing
As a concerned member of the public, I am deeply troubled by the proposed NC bill 237 that aims to ban the use of masks for health purposes in public. This legislation directly threatens the health an...
t.co
men door mijn ambulante begeleidster Nadia.
En sinds 2 dagen komt er enorme verbetering in mijn lijf.
Ik loop veel beter.
De trap gaat makkelijker.
De verstijving is er niet meer.
Wat stress van geen zorg hebben en de jarenlange overbelasting doet Lichamelijk,wordt nu wel erg duidelijk.
#autisme #ME
"Yes, it is #ME - and I will fight this desease like hell!"
Danke @bettinagrande.bsky.social & 1.000 Dank allen Organisatoren, Rednern und Teilnehmern der #UniteToFight2024 Konferenz. 🙏
Es ist unglaublich was hier großartiges entstanden ist! 🚀
Geballtes Fachwissen auf Weltklasseniveau! 🏆
A nova modalidade do programa Desenrola é voltada para MEIs e micro e pequenas empresas.
#LobsContabilidade #Desenrola #EPP #ME #MEI
lobscontabil.com/comecou-o-de...
Lobs Contabilidade -A nova modalidade do programa Desenrola é voltada para MEIs e micro e pequenas empresas.
lobscontabil.com
Huge disappointment… I would give zero stars if I could!
#HumourDespiteTumour #PEM #PostExertionalMalaise #ME #MEAwareness
“Rowan was the fittest he had been, running 15km a day & preparing to take a fire service exam…
doctors were like ‘There’s nothing wrong with you’…it was medical gaslighting…
why would I quit my job…It just didn’t make any sense”
#LongCovid
#ME
#MECFS
t.co/gwW2aCJYnY
Rowan Clarke, 32, a part-time video editor and sound designer from Colchester, says he had a headache for a year straight
t.co
Almost forgot:
- Viruses such as Zika and SARS-COV-2 can trigger Th17 immune activation as a sort of decoy (attack the bacteria, not us!)
- I suspect this *could* explain some types of post-viral illness such as #ME, #POTS, and #LongCovid
Today is #MEAwarenessDay
People with #ME have been through so much
They deserve basic medical support
They deserve funding for their illness
They deserve a chance to get better
They deserve to be heard
Listen to their stories, support as best as you can.
Every voice is precious
#Mecfs
Listened to someone telling me they are ill, how awful it is to stay indoors for a few weeks needing to rest, whilst also able to play golf. Said to me, housebound for 16 years and had to spend 2 years living lying flat. If the full spectrum of #ME is not on your radar lucky you. Watch this video.
Powerfully beautiful.
'The Prison of M.E'
youtu.be/yLRateIQdzc?...
#IMEAD24 #MEAwarenessDay #May12
Having #severeME and being homebound often feels like a prison. You're locked up in your home and your body, away from society, your loved ones, from the lif...
youtu.be
#meawarenessday
💙#MEAwarenessDay is May 12th because it was Florence Nightingale's birthday in 1820
💙She had #ME for 25yrs, from Crimean Fever, spending many years bedbound
💙224 yrs later we still have #pwME being harmed in hospital & no mitigations to prevent airborne infections
In Aotearo the estimated ME cases are between 25,000 and 45,000. Now, with 50% of Long COVID cases meeting the diagnostic criteria for ME we are expecting a rise to 416,350 people in our country facing this debilitating condition.
#LongCovid
#ME
This year, May 12, coincides with the 55th anniversary since the World Health Organisation (WHO) first classified Myalgic Encephalomyelitis as a neurological disease.
Yet there is still no cure, and no universal treatment. Over half of the people with Long COVID may develop ME.
#LongCovid
#ME
Here is the program for #UniteToFight2024
So many fantastic speakers
Free to register
#LongCovid
#ME
On 15 May and 16 #UniteToFight2024, will take place online and it is free to register. Amongst the many speakers are Amy Proal-PolyBio, Dr David Putrino, Akiko Iwasaki, Dr Anna Brooks from Aotearoa and many more @drannanz.bsky.social
#LongCovid
#ME
The first and biggest community-driven ME/CFS and Long COVID conference
unitetofight2024.world
On 15 May and 16 #UniteToFight2024, will take place online and it is free to register. Amongst the many speakers are Amy Proal-PolyBio, Dr David Putrino, Akiko Iwasaki, Dr Anna Brooks from Aotearoa and many more @drannanz.bsky.social
#LongCovid
#ME
The first and biggest community-driven ME/CFS and Long COVID conference
unitetofight2024.world
Ich würde so gern mitmachen
Hab mich schon als Kind auf Bäumen am wohlsten gefühlt,
später durch meine Kinder in Waldbesetzungen klettern am Seil gelernt
Jetzt liege ich mit #MEcfs im Bett
Ganz seltenes Highliht: 30 min im Wald liegen
#ME raubt alles, weil jede Aktivität schadet 😢
#MEawarenessHour
Der Frühling ist da, ich bin im Baum-Aktions-Kletter-Kurse-Vorbereiten Modus für Menschen mit Behinderungen ( nicht nur Rollstuhlnutzende!)
Melde dich, wenn du Lust auf #paraTreeClimbing hast, unkommerziell, politisch . #teilhabe #FightAbleism
Aktionsklettern für Menschen mit BehinderungDu hast eine Behinderung und willst Aktionsklettern lernen?Klettern ist auch mit Behinderung möglich, auf Englisc...
youtu.be
Ich würde so gern mitmachen
Hab mich schon als Kind auf Bäumen am wohlsten gefühlt,
später durch meine Kinder in Waldbesetzungen klettern am Seil gelernt
Jetzt liege ich mit #MEcfs im Bett
Ganz seltenes Highliht: 30 min im Wald liegen
#ME raubt alles, weil jede Aktivität schadet 😢
#MEawarenessHour
🌳 Cultivating @Mint_Blockchain MintTree $MINT in the #MintForest by @Mint_Blockchain, the L2 for the NFT industry!
Collect your ME point here: [https://www.mintchain.io/mint-forest?inviteCode=3B015EE2]
#MintBlockchain #NFT #Layer2 #ME
#lucky #trust #repost #hunters #koindrophunters
This is a world that does not give a shit about disabled or chronically Ill people. People who are different in any way will be demonized & granted zero credibility. Just as they were happy to see gay men and addicts die of AIDS, they are perfectly happy to see people languish & die today #ME #COVID
#MEAwarenessHour
Don't forget #ME
amandafrancey.blogspot.com/2019/05/dont...
#MillionsMissing #may12 #mecfs #me #cfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #fm #Fibromyalgia #meAction #pwME #pwMECFS #chronicpain #ChronicallySick #Spoons #12may #ButYouDon’tLookSick
amandafrancey.blogspot.com
Re Current conversation currently being had on X re the NHS website & content on M.E.
#pwME #ME #SevereME
www.instagram.com/reel/C6BvunA...
2 likes, 0 comments - mefoggydogApril 21, 2024 on : "Re Current conversation currently being had on X re the NHS website & content on M.E.
#pwME #ME #SevereME".
For anyone considering HR monitoring check out Physios for #ME who have more info and two podcasts.
www.physiosforme.com/heart-rate-m....
For many with #ME the distinction between the mid-table groups may be somewhat muddy. And for those of us with dysautonomia and PoTS we need full investigations and medication together with electrolytes, compression etc. But HR monitoring gives very valuable data.