今日は青いシーソーをお届けします😃
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筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
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#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
There's not a huge #mecfs community here yet, but that will only remain true if we don't post stuff here. I hope you crosspost from Twitter more, it's always good to see you here! 🏆
Ok the guy I'm up early and waiting for today isn't here yet and I'm running out of adrenaline. Which is the thing that keeping me upright.
This is Ungood. #mecfs
今日は青い三角コーンをお届けします😃
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
Me at the #eclipse, #tummy showing, Timbit doing her ESD duties, lying down because of my #mecfs. It was a very good day.
#bbw #Pomeranian
今日は過日の青空をお届けします😃
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
Am 11.05.24 organisieren wir zum 2.Mal in Berlin eine große, hybride #LiegendDemo! 💪🏽💙
Neu ist diesmal, dass die Demo zeitgleich in 12 Städten deutschlandweit stattfindet. Es wird spannende Redner'innen geben, Beiträge von Betroffenen und beeindruckende Bilder. ⬇️
#mecfs
Hörenswert: Georg Psota zu #longcovid #mecfs
www.youtube.com/watch?v=-Gnp...
Zwischenfazit: In der #postcovid Reha sind alle sehr verständnisvoll, wenn man Anwendungen absagt, weil es zu viel wird.
Wenn dann auf dem neuen Wochenplan auf fünf Tage verteilt ganze 10 sportliche Aktivitäten stehen, macht das dennoch ein mulmiges Gefühl. 🫣
#covidisnotover #longcovid #mecfs
i want to do stuff but i need to not do stuff haha
#mecfs sucks. i’m laughing at it now because i’m getting out of a mega crash and in a smol crash from seeing a friend and over extending a bit. so i’m in good spirits.
today feels like boredom’s close though and i don’t like it heh
今日は過日の青空をお届けします😃
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
Timbit is doing her job right. She is my ESD and she is showing her “lap” command mastery. Good lap, Timbit!
#mecfs #disability #pomeranian
Ok, no, I've had enough of today. It feels like someone's replaced my leg bones with angry lead. I'm going to bed. #mecfs
"Someday you will ache like I ache". but you get to wait until you're 90 years old.
#ache #rheumatoidarthritis #chronicillness #chronicillnesshumor #chronicillnessmemes #autoimmune #autoimmunememe #spooniememe #spooniehumor #fibromemes #fibromyalgia #spoonies #mecfs #longcovid #chronicillnessmemes
CHILLER DO NOT START YOUR DAY BY ROARING "MOTHERFUCKERS" AT THE BEDROOM CEILING AGAIN.
DO NOT CRY. #mecfs
今日は過日の青空をお届けします😃
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
This is spot on. My baseline drops every. single. year.
That's a one way trip.
And it's terrifying. I just never think about it. There's no point. #mecfs
Absolutely brilliant thread on #mecfs "pacing", which is to say, "deciding what you are capable of today with regard to how much available energy you have Vs how many unavoidable tasks you have to deal with."
I am very sorry to learn of the death of Beth Mazur.
#pwme #mecfs #millionsmissing
今日は過日の青空をお届けします😃
小さく写る岐阜城🏯
*
筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。
*
#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge
Es gibt jetzt übrigens diese coolen #mecfs - Awareness-Shirts bei DerTaschenmacher.de und pro Shirt gehen 5 Euro an eine ME/CFS-Orga. Abstimmung erfolgt dann auf Instagram bei black_shepherd_style.
Es soll gegen die Verharmlosung und Somatierung wirken.
Hab einen schönen Tag 💙
i’m at the stage of getting out of the crash where i am unsettled and frustrated and mildly annoyed at everything haha. it’s over all good it means i’m healing but it is indeed frustrating.
#mecfs